Monday, October 1, 2012


I can't tell you how many times I have thought of this blog and the people who used to read it and support me. I would like to thank each and every one of you for the support and love you have shown me over the years in this journey of autism. I have to say that I am quite sure I haven't thanked you enough. In fact, I may have never thanked you at all, but if you are still there, I thank you. By now, I have probably lost all my readers except for a few, so I may never really know if anyone is still reading, but if you are, I would appreciate you letting me know in the form of a reply at the end of this post.

I would have to say there is probably nothing worse than reading someones story (aka mine) and watching it unfold and knowing the outcome isn't going to be good. Kind of like watching that train wreck of a show that TLC is airing right now, called, Breaking Amish. You just know it's not going to end well. That's the story of my life to date. You the reader, have followed me along and watched it all unroll and unravel like it always does, until it spun around a few crazy times and sputtered, choked and coughed, then finally died. Oh, I tried to revive it once or twice. Said I cared about it, and pretended to be concerned by performing bloggers CPR on it. Said I would vow to update and let you know what was going on. Truth is, I really must not have cared too much. Truth is, I was just tired of autism and everything that goes along with it and I didn't want to share and feel so vulnerable anymore. Truth is, I had lost my way and the only person who was going to rescue me, was in fact ME.

So here I am before you, admitting to God and to others, that I have greatly done a disservice to myself, to my kids, to my marriage and to my readers who once believed in me. Autism has a way of robbing you of all that you love sometimes. And even though I put up a really good fight, in the end, I let it win. I let it beat me and I let it beat us. For a smart girl, I can make some really, really dumb decisions sometimes. Here lies the problem, I am a fixer. Oh, how I love to fix people. It's like I make it my full time job. If you are broken, I want to be with you. If you are broken, then please let me help you and I promise I will fix you all up. The thought almost makes me smy (that's smiling and crying at the same time). My need to fix situations and people is what ALWAYS gets me in trouble. Problem is, I can spend all this wasted energy trying to fix other people, but I sell myself short by never stopping to fix myself. I always come around sometime after the fact and realize what I have done (just like now), but then I seem to somehow inevitably do the exact same thing again in the next go round. Never seeming to learn from the last debacle that this is not how life works. Seems to me that Einstein quoted the definition of insanity as doing the same thing over and over again and expecting different results. I should really tape that quote to my forehead.

In one respect, it's probably a good thing that God chose me to be Ivy's mom. Because He knew how hard I would fight to fix her. He knew that I would be diligent and work tirelessly to find a cure for her or for a better way. He knew I would leave no stones unturned and that I would not be willing to take no for an answer. He knew I would never back down until she was fixed or better. He knew I was a warrior when I needed to be and for that I thank Him with my whole heart. I thank Him for believing in me so much, that He thought I could bear this cross for her. But, on the other hand, I feel like I let everyone down. I feel the shoes were too big for me to fill, like the order was too tall, like I.. I  just feel really tiny.

So what's next you ask? Well it's seems like a good time to give myself a swift kick in the backside and get back to doing what I do best, and that's sharing my story. I have been inspired recently by an unnamed source, but it was enough to get my wheels spinning again. I have a lot of amends to make and there is no time like the present to get started. I pray I won't let you all down this time. Keep the faith.


Eugene Wallingford said...

I still read your posts when they hit my newsreader. Good luck with your re-boot. I can only imagine how hard it must be to parent under such circumstances.

Anonymous said...

I'm still here....

Never give up, never surrender, improvise - adapt - overcome.